Finally there is suppose to come a cure out in 2010 for Porphryia. While I don't know the full extent of this cure, what it is or how it works, or even if it's for all types of Porphyria, I am hopefull that maybe one day I will feel "normal" like the rest of the world?? I am always sepekial when stuff comes out. I want to wait a few months or so and see how other people do with these new found cures before I jump into the action. If something terribly goes wrong, I don't want to be the one it goes wrong on. Apparently they are testing it out now, for two years until they release it. So hopefully it will work as I'm praying for it to. If it does, I will be so relieved that maybe I will be pain free and not have so many Porphryia attacks. But what about the last 26 years of my life that is down the drain because of Porphyria? Who knows, I guess I just have to start from scracth and pray for a new life without Porphyria and without lots of doctor visits, hospital trips, pain medicine, horrific pain, etc. And maybe the rest of my life will fall into place, one can only hope and pray for that. I started crying the other day in church when the preacher said there would be a day that would be when Jesus would call us up to Heaven and change our mortal bodies to immortal bodies. And as he was saying this I suddenly realized that there would be no pain, no heart ache, no pain meds, no hospitals, I would be pain free. I can only hope and pray for such a day..................
Monday, September 29, 2008
Finally a Cure???????????
September 29, 2008
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Labels: pain free , Porphyria , Porphyria cure
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Labels: pain free , Porphyria , Porphyria cure
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