All About Me!!!

Ok, so it's been a long time since I wrote anything really about myself. Most of what I write is poems or about God or my sickness or what I'm up to. So here is a mini all about me story.

When I was little I was full of energy and usually ended up bouncing off the walls! Not literally!  I loved dancing. I would come home from school and dance for hours. I was always listening to music. I remember being in school and all I could think about was going home turning the music on and dancing. Then as I got older I got sick and the doctors couldn't figure out what was wrong with me. My parents took me to all kinds of doctors, I had all kinds of tests and procedures done. It got to the point where I was sick of needles, sick of tests, and sick of the doctor. In general I was just sick of being sick. It wasn't until my senior year of high school the doctors found out I had a rare genetic blood disease called Porphyria. Still there are eight different kind of Porphyria and the doctors didn't know which kind I had. I would have to wait a few more years to know that I had Coproporphyria. It can be extremely painful. I have been through a lot with this disease. I don't even know how to begin to tell what all I've been through. It was frustrating because I would tell people I was sick, but because I didn't always look sick, because they didn't understand the disease or never even heard of it they didn't believe me. I would get so sick of explaining my disease, explaining yes I am sick. It stole years off my life. My friends moved on without me, my family disliked me, it was only me and my parents and God. Then my dad got lung cancer which ended up being cured and he is currently in remission. But out of that I met an oncologist/hematologist, my dad's doctor. He knew about blood disorders and was able to help me. There is no cure for what I have. But with prayer, food, and medicine I'm able to manage it better now. I still have moments, days, where I don't feel good, I have to fight through the pain and suffering to keep moving on. Currently I'm back in college working on my degree. I'm getting close to finishing in a little over a year. I love to write, I used to write a lot more than I do now. I would just spend hours writing spilling out my emotions and thoughts. I love art. Painting is one of my passions. Even though I'm not the best painter I still love it. Most of my artwork is very abstract. I have a unique way I see the world. I believe all things are possible through God. Even things we can't understand. I have a child like sense of wonder maybe fairies could be real, I would love for mermaids, unicorns, dragons, etc to really exist. A lot of the time I'm in my own little world. Even though I have grown up and seen the world I do still maintain that sense of wonder something I hope to keep with me forever. 

No time

This is an old poem I wrote a long time ago I just found it and thought I'd share it.

Trapped inside a world full of confusion and doubt, fear creeps in and work his way all around.
There's no time to pray and there's no time to breathe, there's only time to worry about tomorrow and what tomorrow brings.
But don't worry, don't let fear take hold, for Jesus will heal you, Jesus will make you whole. 
Just don't worry just live and let be. Take hold of life's reigns and be the best you can be.