Wednesday, March 4, 2020
All About Me!!!
When I was little I was full of energy and usually ended up bouncing off the walls! Not literally! I loved dancing. I would come home from school and dance for hours. I was always listening to music. I remember being in school and all I could think about was going home turning the music on and dancing. Then as I got older I got sick and the doctors couldn't figure out what was wrong with me. My parents took me to all kinds of doctors, I had all kinds of tests and procedures done. It got to the point where I was sick of needles, sick of tests, and sick of the doctor. In general I was just sick of being sick. It wasn't until my senior year of high school the doctors found out I had a rare genetic blood disease called Porphyria. Still there are eight different kind of Porphyria and the doctors didn't know which kind I had. I would have to wait a few more years to know that I had Coproporphyria. It can be extremely painful. I have been through a lot with this disease. I don't even know how to begin to tell what all I've been through. It was frustrating because I would tell people I was sick, but because I didn't always look sick, because they didn't understand the disease or never even heard of it they didn't believe me. I would get so sick of explaining my disease, explaining yes I am sick. It stole years off my life. My friends moved on without me, my family disliked me, it was only me and my parents and God. Then my dad got lung cancer which ended up being cured and he is currently in remission. But out of that I met an oncologist/hematologist, my dad's doctor. He knew about blood disorders and was able to help me. There is no cure for what I have. But with prayer, food, and medicine I'm able to manage it better now. I still have moments, days, where I don't feel good, I have to fight through the pain and suffering to keep moving on. Currently I'm back in college working on my degree. I'm getting close to finishing in a little over a year. I love to write, I used to write a lot more than I do now. I would just spend hours writing spilling out my emotions and thoughts. I love art. Painting is one of my passions. Even though I'm not the best painter I still love it. Most of my artwork is very abstract. I have a unique way I see the world. I believe all things are possible through God. Even things we can't understand. I have a child like sense of wonder maybe fairies could be real, I would love for mermaids, unicorns, dragons, etc to really exist. A lot of the time I'm in my own little world. Even though I have grown up and seen the world I do still maintain that sense of wonder something I hope to keep with me forever.
Labels: Coproporphyria , God , life
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No time
Trapped inside a world full of confusion and doubt, fear creeps in and work his way all around.
There's no time to pray and there's no time to breathe, there's only time to worry about tomorrow and what tomorrow brings.
But don't worry, don't let fear take hold, for Jesus will heal you, Jesus will make you whole.
Just don't worry just live and let be. Take hold of life's reigns and be the best you can be.
Labels: God , Poems
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Tuesday, September 24, 2019
Rainy Day
Labels: Faith , God
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Sunday, September 10, 2017
Seeing the Good, Being the Good
Labels: God
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Wednesday, December 7, 2016
God Brings Only Good
James 1:13King James Version (KJV)
Labels: God
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Monday, April 9, 2012
Porphyria Update
Labels: Bad Periods , God , Pain , Porphryia
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Saturday, March 31, 2012
Porphyria: My Breaking Point

Labels: Disease , God , Healing , Porphyria
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Saturday, February 25, 2012
Locked Away Like A Fairy Tale
Lost in a never ending wonderland, dreams awake and nightmares begin.
Just like a princess locked up in a castle tower, a wondering mermaid looking for her place between two worlds.
My story is no different than a fairy tale. Only a happy ending is still to be here.
Caught in a world of mass confusion. I suffer daily dis-allusions.
Living in a prison cell all my own. Locked up in my own body that's true imprisonment.
A blood disease, a curse, and no cure. I live in pain, both physical and mental.
Sometimes I think one wrong step will put me away for life, like they would come and get me and lock me up in a straight jacket.
If I told the world the real amount of pain I was in. They wouldn't know what on earth was keeping me here. They couldn't understand how I deal with the pain. Even I don't know how I get through the days. I can just count it all to faith. The power of God is mighty and the disease small.
Remember this next time you think your life is too tough. Most people don't know what true pain is, sheer horror that can only be felt inside, feeling like your blood is roasting you alive. Lost in a world of science fiction and reality, you never know just what to believe. So I turn to God as my only source of comfort in these things. Only God can save me from a horrible fate. I pray one day there is a cure and no other person has to suffer like I do. I pray that they find God if they are sick too.
Labels: blood disease , God , Porphryia
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Friday, November 18, 2011
The Whole Duty Of Man
Let us hear the conclusion of the whole matter: Fear God, and keep his commandments: for this is the whole duty of man.
I've been reading in Ecclesiastes lately and I have to admit I love this book! How in depth he was and in chapter 12:8 it says: Vanity of vanities, saith the preacher; all is vanity.
I love this, he's always talking about vanity and evil under the sun. While some people may avoid Ecclesiastes because they don't understand it. I totally get it. It's one of my favorite books in the bible. Ecclesiastes is genesis! It puts things into prospective in our lives. Vanity of vanities, saith the preacher; all is vanity. How deep and meaningful that is to me! No matter what we work and accomplish here on earth if it is not for God it is vanity and meaningless! Our hearts, our souls, our spirits must be so in tuned with God that our hands do no evil, our hearts turn not from God, our mind is constantly filled with good thoughts of God. These is what is right. Filling ourselves with worldly lusts and desires will get us nowhere. Having dreams that fulfill our meaningless goals in life is all vanity and a waste, evil under the sun as he says in this book. Life without God is simply not an option for me. And it shouldn't be for each and every one of you. Life with God is so much better! Even though were humans and have problems in life, God is good and always there to help us even if it's in ways we do not understand. Roads we take may be hard, but it may improve our character so that God is polishing the diamond to make it shine brighter than ever before. Maybe the wrong turn you made wasn't God's will, it was just apart of life's circle and God take that and turns it into something wonderful! I love when God performs miracles, I love it when he baffles the medical field, when doctors can't explain what happened to me or anyone who's ever been sick and gotten a negitive test result back and then miraclousy that problem was gone, just like that. When God reaches down and touches our body, I can still feel his hands as he turned my insides around that night I was prayed for and got healed! I may have sickness, and I may even die again and not return back to life, because God did not promise any of us forever here on earth, he did promise us forever in eternity in Heaven with him if we give our hearts and lives to him. If we do that everything will work out.
Back to the first verse Fear God, and keep his commandments: for this is the whole duty of man. I can't believe I've never gotten it before. I know that I was saved many years ago, my heart has always been pure and I have always loved the Lord, but I thought I had to do all these things for God, I thought I had to single handedly change the world and point them to God. For years I wanted to become a famous singer and or writer (I still do, it's my passion- besides God of course!) But it was never for my benefit. Sure it would be cool to be famous and all, but that's not what I'm after, I'm not in it for me, I'm in it for God. I want to go to Hollywood and stand up tall and point to the cross of Christ. I want the world to see this God I know and love and see what he's done for me and through me and somehow change people's lives for the better, I want to point people to Christ. Not shine in my own light, but make God shine through me. This is something that people did not get from me for years. They wondered why I was so obsessed with becoming famous, it wasn't for me, it was for God. I felt that if I could stand tall for all the world to see, that I could change the world and point people to Christ. I see that in this verse it says to Fear God and keep his commandments that is the whole duty of man. Fear which may mean to reverence the Lord, which I do and keep his commandments which I try to do to the best of my ability, that's it. Living for God is so simple and for years I thought I had to turn over cities just to be good enough for God. But all I had to do was to be myself and let my true light shine in me and God can work through that.
Labels: Ecclesiastes Ch 12 , God , Salvation , The Whole Duty of Man
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Friday, September 16, 2011
Preparing Against The Wiles Of The Devil
Finally, my brethren, be strong in the Lord, and in the power of his might. Put on the whole armor of God, that ye may be able to stand against the wiles of the devil. For we wrestle not against flesh and blood, but against principalities, against powers, against the rulers of the darkness of this world, against spiritual wickedness in high places. Wherefore take unto you the whole armor of God, that ye may be able to withstand in the evil day, and having done all, to stand. Stand therefore, having your loins girt about with truth, and having on the breastplate of righteousness; And your feet shod with the preparation of the gospel of peace; Above all, taking the shield of faith, wherewith ye shall be able to quench all the fiery darts of the wicked. And take the helmet of salvation, and the sword of the Spirit, which is the word of God: Praying always with all prayer and supplication in the Spirit, and watching thereunto with all perseverance and supplication for all saints.
This passage to me tells me that we are not in a physical battle where we can always see our enemies and fight them. But we are in a Spiritual battle where our enemy is satan and sometimes it may be difficult for us to tell where he is and what snares he's trying to throw in our way. So we must be in prayer and our spirit must agree with the spirit of God, so that we will be ready for any kind of distress or persecution the enemy may bring upon us.
Labels: Ephesians 6 , God , Prayer
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Monday, May 23, 2011
Blown Away
Labels: God , Joplin MO , Peace , Storms , Tornadoes
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Monday, May 16, 2011
Her Faith Is Strong
Labels: Faith , God , Poem , sickness
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Tuesday, May 3, 2011
God Does Heal
Labels: God , Healing , life , sickness , Strength
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Wednesday, April 27, 2011
God Is Already There
When all hope seems like it's gone from you
When the worries of the world weighs on you
Rest assure that God is already there.
When life seems like it's given up on you
When hope is gone and you lost all faith too
When times are rough and you have nobody to turn to
Rest assure that God is already there.
Even at the bad times of life,
Even if the road is too hard to walk,
Or if the mountain is too steep to climb,
Rest assure that God is already there.
God is there with you through the good and the bad.
God will never leave you alone.
Even when you feel like nobody's there,
In the silence you can hear God through a prayer.
Rest assure that God is already there.
Labels: Faith , God , Hard Times.
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Saturday, February 5, 2011
A Psalm in the Night
A Psalm in the night. That’s all I have to offer you is a Psalm in the night. My thoughts betray me, my mind is heavy and I am sleepless and frightened. Like a child of the dark, or of a monster under her bed. I am alone in a dark place and it scares me, no lights, and no lights about to guide me out of this maze of insecurity. I am frightened, I feel helpless, but I know I’m not alone, not completely, because I know that through it all, in it all, and above it all, I will always have God with me. He is my protector of the night, my guide to the new light. The only one who can save me from losing all grips on reality. He is my only hope. There is no cure for this disease, which plagues me day by day and slowly wears down on the particles of my being. Man cannot help me anymore. I can take no more medicine, I can find no cure. My only salvation is in God. I feel God making me stronger and leading me day by day. And I know that if anyone can cure me or get me through this, it is God. He is freeing me from this prison cell I’m in. There’s no bars, no doors, but I am trapped and cannot get out, but my help is coming, my help is coming in the name of the Lord, Jesus Christ. Jesus thou son of David have mercy on me.
Labels: God , sickness , Strength
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Tuesday, February 1, 2011
Belief
I Believe.....................................
1) I believe in God, about all else God is very real.
2) I believe in Heaven and Hell. Yes satan too.
3) I believe that true love is out there for those who are meant for it. No I do not believe that everyone is given a perfect partner here on earth. Look at Apostle Paul. He never married. So no, I don't believe in soul mates.
4) I believe in good and evil, there is a great battle being fought whether anyone is aware of it or not. A battle of good and evil is going on right before your eyes.
5) I believe in miracles, this should really be number 3. This is a very important belief for me. Miracles are the core of my very existence.
6) I believe in the possibilities of other beings. No no little green men with antenna's saying take me to your leader, but you never know what is all out there. After all this is a big big world, we would be very arrogant to assume that were the only ones here. I mean, for instance have you ever wondered if fairies were real, or if unicorns really do exist? I no it might sound strange, but it's something to think about.
7) And this should be with one and two, I believe in the word of God. The power of the Word. The power God gives his Christians when they are truly made followers of Christ. The power you have when you witness to a lost soul, when you lay your hands on someone to pray for them to be healed, when you pray that you will get by somehow and know that you don't know how except by the divine hand of God. No, we ourselves posses no great power in us. It is only through Christ we gain powers of children of God when we are born again. We get Spiritual Gifts. We just need to pray more on how to use them. Because a lot of people, I'm guilty too, don't always use the Spiritual Gifts God has given you.
I believe in a lot of things, but those are the core fundamentals. I also believe that this world is coming to an end. The book of Revelations tells us all about it; read it. Now, there talking about strange things happening on the news, bizarre weather occurrences, fights over seas, fights right here in our own towns and cities. But what we need to remember is to look to the sky. God is coming back. The bible says when Israel is surrounded to look up. God will protect his chosen ones.
So look up and be prepared, someday we will all have to give an account of our beliefs...
So what do you believe in?????????????????????
Labels: Belief , God
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Thursday, June 11, 2009
God knows and is Waiting.
Labels: God , Grace. , Mercy , Salvation
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Thursday, December 25, 2008
I do NOT blame God!!
Labels: God , grief , sickness
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Thursday, July 17, 2008
Following Christ!
Labels: Christ , God , Psalms
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