My Porphyria Story, sort of, excluding the gross parts!!

OK, here's my story, if your interested. It all started when I was in junior high. I started having major stomach pains, sometimes it would just be dull pains, while others would feel more like stabbing knife pains or in extreme cases like a thousand knives carving out my insides. I was always really thin and could never gain any weight, 5' 7" 100 pounds, yeah looked sick. I always had yellowness to my skin on my face. I would have extremely awful periods. Where I've been admitted to the hospital because of my period alone, that bad! My period has been known to make my blood pressure fall really low, pass out, get white spots where I can only see white spots and everything else is blurry. Anyways, it was bad. But I always believed in God and I always believed that he could heal me. So I would pray all the time and ask God to heal me. I would also go down to the altar at church and be prayed for God to heal me. Anyways, so I would go to the doctor and they would do all kinds of tests, test after test after test. Finally in my senior year of high school they told me I had a rare blood disease called Porphyria. It wasn't until later that I found out I had CoProPorphyria. Anyways, there is no cure for Porphyria, so we just have to flow with it. NO FUN!! But anyways, one night I got really sick and I truly believe I was going to die, long story short God saved me that night and healed me and took away a lot of the pain. I quite having real bad periods (although sometimes I do get the not so fun ones, but nothing like what they use to be, I do get weak and dizzy though) But I no longer have the stabbing knife or thousand knives carving out my inside pain. Sometimes I get sharp pain, but again nothing like it was before. I quit having the yellowness about my skin and started gaining weight and feeling better. Although I am limited to my daily activities. I do get weak and dizzy, and I don't always have the energy I should have, and I do have weird pains all over my body, but God has truly healed me because from what I experience years ago, it was life or death, now it's so much better than it was I am thankful for his touch. Anyways, thought I'd share my story with you. I didn't go into all the details, you don't want to know the truly gross parts. LOL!

~Rachel ;)

Ode to Electricity

My Ode to Electricity, sung to the tune of home on the range! Wrote during the last ice storm where we had no electricity for four days!!

Oh give me a home where the power acutally works and the water is hot all day.
Where the fridge works and the food will stay cold and not spoil on my plate.
Oh home home with the lights where have you been all my life?
I'm so tired and cold, can't see the end of my nose and now my little candle is running low!
Oh home home with the lights hot water to bathe by,
Where I won't be cold and end up with pneumonia just trying to take a bath.
Now the trees are all falling down, the roads has limbs all around, and I can no longer see my neighbor's house!
Home home where's my lights?And my hot water to bathe by? Heat on my feet so they won't freeze and my toes turn blue and stiff! Well now my lights fading out, I think I'll go lay down, under twenty blankets or so just trying not to be cold and think of Tahiti and not snow!!