My ode to Sephora

Sephora you are Heaven to me. I walk in and see rows of makeup and special beauty treats.
I get memorized by the different brands and colors. Oh Sephora won't you come to me. I can't live without your deals and special treats. You mean so much to me. Sephora there is not a word that can describe your beauty and wonder. I could live in your awesome store forever and ever. I never thought I'd find a makeup store quite as grand as you. I never imagined I'd find a love as true as you when your shimmery lip gloss and ever lasting mascara and your no slip foundations seem to last forever. I think I'm lost in paradise. Sephora I need a fix me up now, please don't close before I get there. Won't you just make me a spare key and I'll put the money in a bag by the door. So when your closed I can still shop for hours and hours more. Sephora what would I be without you. I'd be lost in a sea of meaning less makeup and junk makeup pools. Sephora I'm so glad I found you. Your makeup is best; your makeup is true. Sephora will you ship me out a great big box of goodies now. I don't care what you put in it just ship it to me before I go mad from makeup withdraw symptoms. Sephora I need you. Sephora here I come.

Bernie Mac

Bernie Mac was a great comedian and actor. He recently died a couple days ago from complications of pneumonia. It's very sad and tragic that people we love die. Especially when you grow up watching them on t.v. Like Don Adams who played in Get Smart died a year or so ago. That really broke my heart. But as humans we live and die. I just want to wish their families the best. RIP.

Trivia Time

Here's some trivia you might not know.

The medical show Quincy M.E. that ran from late 70's to early 80's did a two week special on rare diseases. Because of their episodes people in the community started giving money to the rare disease foundation. Jack Klugman who plays Quincy went to congress and spoke on the subject of rare disease. As a result there was enough money given to the rare disease foundation that they were able to make the first drug for rare disease called Hematin. Hematin is like a blood transfusion for people with Porphyria. This is the only medically approved treatment for porphyria. Who said one person couldn't make a difference.

How would you like your sugar?

Sugar one of the worlds best substance ever created. Although it's good in cakes and doughnuts and chocolate. Sugar really is bad for you. The more you eat of it, the more weight you'll gain. And while trying to avoid it completly dosen't work because then you experience withdraw symptoms and start eating even more of it. It is best to cut down on the sugar. But it's just so darn good! You can eat doughnuts, chocolate, brownies, fudge, cake, ice cream, cookies, and so on. And the fitness magazines will tell you that eating more fruits and veggies will help you fill more full and loose weight, while they may help you loose weight, cause your virtually eating nothing, they don't make you fill full. In fact I'd have to eat a mountain of grapes before I was full. But in all honesty as sugar is bad it can be good as well. For those of us with medical problems or who are anemic when we feel an attack coming on, grabbing the sugar acutally helps it and not hurts it. But I know there's got to be some moderation in between the two. Where is it? That I do not know. So now while I type this blog on sugar and eating a doughnut with my other hand, I think I'll just point out that sugar is the best substance ever found! So now with that sad, how would you like your sugar? Krispy kreme doughnuts please!!!

Rachel's weekly review Acid Reflux

Some of us have acid reflux. Where acid comes up and causes our chests to feel a burning sensation. I have taken several different acid reflux medicines. And here's my review on them.

1)Nexium - possibly the best med for this that's out there. Nexium not only stops acid from coming up but heals the esophagus as well.

2) Priolsec - a cheaper version that is now available over the counter. This is effective. Not as good as Nexium, but still helps stops the acid from coming back up, while you might still feel it a few times, it's a good med for this as well.

3) Protonix- I just hate this med. It's suppose to stop the acid from coming back up, but I have never had much success on it myself. I don't recomind this one.

4) Prevacid- Prevacid is a decent med for this condition. It is better than protonix, but not as good as Nexium, while nothing is as good as Nexium. It will help to stop the acid from coming back up. While you may experience some acid with this med, it's probablly just as good as priolsec, it's along the same lines as priolsec.

My porphyria story - Sick Eyes

I have a rare blood disease called porphyria. There are eight different kinds of porphyria. I have one of the acute porphyrias called heredity coproporphyria. It starts in the blood with the heme and the heme makes porphyrins. People who have porphyria have too many porphyrins and that causes us extreme problems. I first had a porphryia attack after I started my periods. My periods was what brought on the disease. You can have porphryia and it lie dormant and you never experience symptoms until a trigger comes along. My trigger was my period. I use to have horrid periods where I would pass out and have sharp tingly knife pains all over my body, be dizzy, throw up, my blood pressure would drop really low and at times I was admitted to the hospital.It's hard to explain. But there is a lot of pain involved with porphyria. It causes stomach pain, back pain, side pains, just anywhere you can have pains from porphyria. And if you get something like the flu it will make the porphyria worse and it takes you longer to recover from it than normal people. Porphyria is a rare blood disease and needs to be addressed. Not very many people understand how porphyria works and how crippling it is. For me it's very frustrating. Because I have family and friends who do not understand what a struggle I go through on a daily basics. They wonder why I can't hold down a job, when I feel like crap and I'm throwing up my instentines. They wonder why I'm not normal when my blood produces too many porphyrins and my stomach hurts like a thousand stabbing knives. They wonder why I can't be on the fast track. I wonder why they can't understand my sickness why they can't see I'm trying my best. I try to go to school and I get sick and in the hospital. I try to work and I get sick and can't. It's very frustrating and annoying. I have no time for people who don't understand what I go through. And who critizes me over something I have no control over. I wished I could be normal and have a normal life, be graduated from college and have a job. But for me trying to get through each day is a challenge. The more I try it seems like the harder it becomes and I'm tired of people judging me. When I was a lot sicker than I am now, I had more attacks more often and I was really bad off. I always had faith that God could heal me. I prayed and prayed and went to the altar at church and the preachers prayed for me. And I know God has speared my life and let me live again. Well I kept going to church and being prayed for and one night while the preacher was praying for me I felt like an invisible hand reach down into my stomach and turn my insides around and make me whole. After that I stopped having as much problems as I was having. I stopped having the horrid periods I was having and I started gaining weight. I could never gain weight and I looked sick from the pictures I have of myself back then. I knew that God had heard my cry, and I knew that God had healed me. Well it wasn't the only time God healed me, He's healed me more than once. But anyways so for several years I got better, I was going to school and working part time. But then things got bad. God had healed me of death and healed me of my sickness.I thank God each day for healing me when He did. I just want people to know more about this rare disease and to understand how bad it can affect people. It's not easy living with something that is crippling and causes you to hold back on your life. While the world goes on around us were stuck sitting on the sidelines while the rest makes fun of us. If you had my disease you'd understand how I feel. Until the day that God completely rids me from this disease or calls me home I still have it. And want the world to know porphyria is no laughing matter.

Porphyria the unkown disease.

Porphyria is a rare disease that starts with your blood. There's a substance in your blood called heme that makes porphyrins, somehow porphyrins contribute to blood flow. People with too many porphyrins have porphyria. Porphyria causes a lot of different problems. There are eight different types of porphyria. The main ones are the acute porphyria's. In these porphyria's there is severe abdominal pain, I like to explain them as sharp stabbing knife pain, or like having an operation without the anstethia. It's not little stomach pain, it is at times intense unbearable pain. Then they have sensitivity to the sun. Something about the rays of the sun affects people with porphyria. I have porphyria myself and I know that when I'm out in the sun too long I start to feel strange and I can't think clearly and I start having the stomach pains. It brings on a whole new world of pain and sickness. Also there are mental side effects and nervous system affects. Such as worry, fear, and nervous side effects, like panic attacks. Thankfully I know a God who heals and has kept me sain throughout all these years. I use to get a horrible fearful feeling that would come on all of a sudden and I'd feel like the world was coming to an end or like I was going to die right then and I'd be hysterical. I'd wake my mom up at night and have her pray for me cause I was so hysterical. Also I have a lot of anxiety and panic attacks. I get real frustrated and start feeling all anxious and then I start hyperventilating and feeling hysterical. There are a long list of medicines that porphyria people have to stay away from. Also there is other triggers such as sun light, smoking, alcohol, and certain foods (which may be different in each person) that will cause attacks. Menstrual cycles for females will cause attacks. Mine were horrible. Right now my periods are all messed up and I don't have a period. But when I use to I would pass out, my blood pressure would drop really low, I would have horrible pains all over my body, Not a place in my body didn't hurt, I would throw up and be dizzy when concuss. It was horrible and on occasion I have been admitted to the hospital because of my periods and I passed out in the doctors office more than once. There's a lot of things that can go wrong with porphyria. Most people do not understand what it feels like or what people with porphyria goes through on a daily basics. It's difficult to see friends and family who live successful lives and don't understand our circumstances. When were trying our best but are shot down by our own blood making too many porphyrins and causing us to have horrid pain beyond description and panic effects. And they wonder why it's hard to hold down a job and rise to the top like all the other successful people do.