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Monday, April 9, 2012

Porphyria Update

This is for all the ladies out there that has Porphyria and horrible periods. I have found a new way to help relieve some of the horribleness on your periods. Tylenol Precise Cream. Yep, rub that where it hurts, most places anyways, and it may sting or burn, but I will say that it will make the horrible unbearable pains better. I found this out today. God of course will help ease any pain, he has always been there with me through these times. I remember when my periods were really bad and I would have to "sleep it off" I would wake up and I could feel the presence of God in the room and could hear angels singing church hymns. And I would know that God had got me through it again. Back then we didn't have pain patches and pain creams like we do today. Just a heating pad, and one wasn't enough believe me. For those who have semi normal periods and don't know what I'm talking about. Think of it like this, you wake up with searing pain through your abdomen, pelvis, sides, thighs, basically everywhere. You go to the bathroom and hope and pray you can finish in time to make it back to the bed, before you pass out, start seeing white spots everywhere, or become so engulfed with pain that it is unbearable. Then you hit the bed and you have to throw up but can't force yourself to get up so you throw up on the floor and maybe a little on the bed, you have blood running down your legs even though you have old granny panties and a pad on. You toss and turn but nowhere can you find any comfort. Your blood pressure drops low and your face becomes white as a ghost, you feel the ghostly whiteness throughout your body. You fear for your life and pray that you will live through this. This is not your typical period. This is a Porphyria attack in period form. Most people don't understand this, you try to explain to them how it feels, but no words could come. You sweat so bad you lie in a pool of your own sweat. You try to talk and you can't, your mouth is dry and you can't form any words, so you just motion with your hands to whoever happens to be there. You have barely just taken a pain pill, everything in your body hurts beyond reason, like searing pricks throughout your veins that has leaped through into your muscles and has now left you paralyzed in pain. And your last and only hope is God. That is what a Porphyria period is like. UNBEARABLE! So I just wanted to share that Tylenol Precise Cream helps a little with the pain for those who need it.