Living with Porphyria

Well I'm 26 years old and I've been dealing with a rare disease called Porphyria since my 7th grade year. My stomach hurts a lot. It's hard to put things into perspective when your seeing a thousand different possibility's for your life. It's like being in a crowded room and seeing no one. It's a horrid disease and I have a hard time coping with it. I pray and take it all to God, and if it wasn't for that I think I would truly be mad already by now. But this is a unique disease, it has to do with the blood and heme in our bodies, mine produces too many porphyrins aka leaving me with porphyria. I don't understand this disease. It's the worst. It's like an obssesion that you try so hard to push out but won't go away.