OK, here's my story, if your interested. It all started when I was in junior high. I started having major stomach pains, sometimes it would just be dull pains, while others would feel more like stabbing knife pains or in extreme cases like a thousand knives carving out my insides. I was always really thin and could never gain any weight, 5' 7" 100 pounds, yeah looked sick. I always had yellowness to my skin on my face. I would have extremely awful periods. Where I've been admitted to the hospital because of my period alone, that bad! My period has been known to make my blood pressure fall really low, pass out, get white spots where I can only see white spots and everything else is blurry. Anyways, it was bad. But I always believed in God and I always believed that he could heal me. So I would pray all the time and ask God to heal me. I would also go down to the altar at church and be prayed for God to heal me. Anyways, so I would go to the doctor and they would do all kinds of tests, test after test after test. Finally in my senior year of high school they told me I had a rare blood disease called Porphyria. It wasn't until later that I found out I had CoProPorphyria. Anyways, there is no cure for Porphyria, so we just have to flow with it. NO FUN!! But anyways, one night I got really sick and I truly believe I was going to die, long story short God saved me that night and healed me and took away a lot of the pain. I quite having real bad periods (although sometimes I do get the not so fun ones, but nothing like what they use to be, I do get weak and dizzy though) But I no longer have the stabbing knife or thousand knives carving out my inside pain. Sometimes I get sharp pain, but again nothing like it was before. I quit having the yellowness about my skin and started gaining weight and feeling better. Although I am limited to my daily activities. I do get weak and dizzy, and I don't always have the energy I should have, and I do have weird pains all over my body, but God has truly healed me because from what I experience years ago, it was life or death, now it's so much better than it was I am thankful for his touch. Anyways, thought I'd share my story with you. I didn't go into all the details, you don't want to know the truly gross parts. LOL!
~Rachel ;)
Thursday, February 5, 2009
My Porphyria Story, sort of, excluding the gross parts!!
February 05, 2009
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2 comments:
Your blog keeps getting better and better! Your older articles are not as good as newer ones you have a lot more creativity and originality now keep it up!
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